We got the call from ANS yesterday evening. The insurance has approved the spinal cord stimulation trial, and we are tentatively scheduled for April 3rd. I'm still a bit freaked out that we are going to allow someone to implant wires in BR's spine -- wires that will be sticking out for the duration of the trial and connected to a controller. Oh boy! I guess if I got past the suprapubic cystostomy tube, I can get through this. It's only temporary.
Now we just have to knock out this latest UTI, and BR will be good to go. Cipro twice a day for 2 weeks should do it.
We are definitely having a rough transition from Adderall to Provigil. After completely replacing the Adderall, BR's mental fog is back. He's sleeping 12-14 hours at night, and in his chair during the day. All this unconsciousness puts him at a greater risk for pressure sores; I'm being extra vigilant. A call to BR's pain management team lead to the suggestion of reducing the Provigil from 2x to 1x/day, and staying off the Adderall.
steve: "So you are saying that less is more?"
PMT: "Yes."
We'll give it a shot. I leave for California on Sunday, and would really like him to be more self-sufficient for his mother and aunt.
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3 comments:
Good luck with the SCS- it sounds scary but so is everything else. I hope it proves worthwhile. The drug regime is very alien to our experience. I hope you can find a balance.
As always, my prayers are with you both. Have a safe trip.
Susanne
Hello Steve, Hello BR,
Richie is right it does sound scary,really hope it works.
Take care.
Love,
Herrad
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