I was able to get BR an appointment with a "Urology Team" today. I was really relieved that we wouldn't have to be making another visit to the ER. Unfortunately, the urologist wanted to treat BR as a new patient, not as a patient with an urgent issue.
"I can't treat you until I get the results of a urodynamics test"
"What does that do?"
"It measures the strength of your pelvic floor."
"We already know his pelvic floor muscles are all messed up. That's why he has the suprapubic catheter."
"Think of it as a cardiologist ordering an EKG."
"OK. Where do we go to get one."
"You'll have to come back in two weeks."
"But it hurts and leaks now!"
We finally got her to sit and listen to what lead up to the current situation. I explained about the bad tube change, and how none of the changes since have done any good. I also explained my theory that maybe the nurse was over-inflating the catheter balloon, and that was causing the bladder to spasm and release through the urethra, thinking it was full.
"How much is she putting in?"
"I think she's shooting for 30cc."
"That's way too much. 10cc should be enough. Let's check that."
She then pulls 25cc of water from the balloon, and puts 10cc back.
We scheduled the test and said our goodbyes, not really happy with the experience.
Fortunately, BR's spasms have reduced in frequency and severity. We'll see how tomorrow goes.