Sunday, May 17, 2009

Action under the sheets

This past Friday, I was working feverishly on a bit of tricky SCons code to correct some build automation issues, when I heard a series of loud cries from the bedroom. The sounds were remarkably similar to those BR makes when he's having a seizure, so when Josue called for me, I feared the worst.

When I entered the bedroom, I found BR alert and crying, with the sheets pulled back off his right leg. I asked him what was the matter, and he said, "Watch this." With great effort, he raised his knee six inches off the bed without using his hands! It's been over a year since he's had that kind of strength and control over his legs.

Ever since the SCS trial, we've noticed that his right leg has been twitching more, and he's been able to bend and extend the foot at the ankle again. Now with this development in his hip flexors, we are wondering if the stimulation may have triggered his CNS to re-route some of the damaged neural pathways. I'm definitely adding this to the topic list for the next visit to the neurologist.

5 comments:

Lisa Emrich said...

Oh boy, that's exciting!!! So all that unpleasant, not quite effective, stimulation may have a wonderful benefit.

Patrick @ Caregivingly Yours said...

Thanks for sharing. Exciting victories of any kind usually leave me slackjawed and speechless. It is sooooo important for all to hear of success.

Caregivingly Yours, Patrick
http://caregivinglyyours.blogspot.com/

Kim said...

Awesome awesome awesome! Here's hoping this is just the first of many successes.

Herrad said...

Hi Steve Hi BR,

Great news

Love,

Herrad

Cranky said...

Steve - great news! It must have felt wonderful for BR to feel move his own leg.

And, your title was perfect! Such a tease. And coincidentally coming in my blogroll immediately after Lisa's "let's talk about sex" post on her blog, so my mind was already slanted in a particular direction ....